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主题 : 我的癌症日记
懒鸟 离线
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600楼  发表于: 2014-02-26   
细柳,不知道为什么我昨天回帖时没看到新的化疗帖子,答复有点文不对题,希望没有让你失去吃掉另外半个芒果的兴趣。

情绪低落到极致时,对着亲人痛哭一场是最好的安慰吧。相比苏珊的无助,你幸福多了,有人可以抱着痛哭,而杰克,他是那么疼你。对于我这样还没有信仰的人,只能自己安慰自己,允许自己在难过的时候尽情难过,回避对人生的质疑是无效的,我们只是凡人。但是过了一个时期后,就要尝试振作起来,毕竟,太阳今天还会升起来,哪怕今天还是阴天雨天,明天后天他总会升起。

我很难过的时候,会找一些喜欢的悲伤的曲目,或是悲伤的电影,听个够看个够哭个够,然后睡一觉。你试试。
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601楼  发表于: 2014-02-26   
一直都在关心的,就是这段时间用table,打字不方便。每次的化疗看得肉跳,祝细柳平安!
有什么用?
jtncepu 离线
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602楼  发表于: 2014-02-26   
细柳,没生病的人也会有你这样的情绪和发泄,接受自己。
洋洋 离线
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603楼  发表于: 2014-02-26   
抱抱细柳,又是一轮化疗,你的痛苦让我们看的心酸难过,又为你的坚强而欣慰。走进医院,面对的都是这样的病人,不免会对生命引发思考,到底为什么会这样?为什么轮到自己?

在我儿时童年吧,跟着大人在农村信过基督教,也知道一点圣经内容,只是长大了我成了无神论者,也不是没有信仰,你所说的上帝,也许就是我以为的命。当我们生活遇到难题无解的时候,我就会说,这也许就是命。

看过一句话,一切都是最好的安排。
现在我越来越深刻体会到一切都是最好的安排。无论我们面对的是什么,欢乐或者疾苦,都是上帝或者说命运最好的安排。没有最糟糕,只有更糟糕。我们都还活着,挺过这道坎,我们会活的更好!

再次抱抱细柳,加油!我们一直与你同在!
若风 离线
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604楼  发表于: 2014-02-26   
人在最亲近的人面前才会哭,细柳你情绪不好的时候可以大哭来舒缓压力,据说这个时候的眼泪是有毒素的,也就是说流泪可以帮助身体排毒,不用觉得不好意思,女人无论多大年纪,都有一颗水做的心!想必你现在的经历,我知道我们的安慰都不能真正帮助到你,经常来留言,只是想告诉你,坚强一些,大家都和你在一起,有这么多颗爱心和你一起,一定可以得到你想要的结果,抱抱你,加油!
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605楼  发表于: 2014-02-26   
抱抱细柳!
细柳 离线
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606楼  发表于: 2014-02-27   
亲爱的朋友们,谢谢你们!

东方,谢谢你的分享!我也知道,其实我信不信主,都一样可能得乳腺癌,只不过因为信主,所以又多了一个可以生气的理由,神啊,你为什么让我经历这个?

亲爱的朋友们,看了你们的留言真的让我感动。其实我可能是太幸运了,生活到现在为止就只有一个遗憾:没生个老二。所以一不高兴,就把这个拿出来跟上帝抱怨,因为这是到现在为止,上帝唯一没有赐给我的东西。

杰克这两天因为感冒,所以搬到阁楼上去睡。昨天夜里,我醒来的时候觉得身边有人,仔细一看,原来是小豆睡在杰克的床上。听到我咳嗽的声音,小豆说:“妈妈,你是不是要吐?我去帮你倒杯热水来。”我问他:“你怎么睡在这里?看妈妈把你吵醒了。”小豆说:“妈妈,爸爸生病了,我来照顾你。”我说:“你怎么照顾妈妈?”小豆说:“我帮你倒水。还有你吐了,我帮你倒掉吐出来的东西,把脸盆洗干净,拿回来给你。”我的眼泪一下子就流出来了,我说:“宝贝,上帝真好,把你送给了妈妈。妈妈有了你,就是世界上最幸福的妈妈。”
mary 离线
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607楼  发表于: 2014-02-27   
抱抱细柳,别想以后的化疗,就想,相比马泰,我们是幸福的人,相比马泰的家人,我们的家人也是幸福的,毕竟我们现在拥有日子。
mary 离线
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608楼  发表于: 2014-02-27   
多么懂事的豆豆。

我之前生病出院回家后,生活也还是不能自理。那时女儿刚刚6岁,读幼儿园大班,家里条件不好,请不起保姆,老公还要上班养家。我们的应对方法是:老公早上买好一天的菜,上班前把中午的菜做好,寒假在家的女儿中午煮饭,热菜。老公下班回家做饭,洗衣服。那个寒假,女儿一下长大懂事了很多,把我照顾的很好。5年多过去了,现在想想那时,很开心,尽管有泪水,可是,我们相扶着,日子有的过,真的很好。
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609楼  发表于: 2014-02-27   
抱抱,小豆真乖!
端午去海边,开心~
oqei 离线
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610楼  发表于: 2014-02-27   
细柳,你找到宝子妈说的止吐药了吗?豆豆真是好孩子。
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611楼  发表于: 2014-02-27   
豆豆真是太体贴了,真好!羡慕!

抱抱细柳,理解你低谷时候的难受和生气。低谷的时候可以听听歌,我现在挺喜欢盛晓玫的歌,很好听。

有一天:http://www.youtube.com/watch?v=7OAkr_Flq6A

有一天,你若覺得失去勇氣,有一天,你若真的想放棄, 有一天,你若感覺沒人愛你,有一天,好像走到谷底。 那一天,你要振作你的心情,那一天,你要珍惜你自己, 那一天,不要忘記有人愛你,那一天,不要輕易說放棄。 這個世界真有一位上帝,祂愛你,祂願意幫助你, 茫茫人海雖然寂寞,祂愛能溫暖一切冷漠。 這個世界真有一位上帝,祂的雙手渴望緊緊擁抱你, 漫漫長夜陪你走過,祂愛你,伴你一生之久。


好好的过:
http://www.youtube.com/watch?v=YRq0keqdCoY


盛曉玫-《好好的過 》

當我不明白的時候 我選擇相信 相信上帝依然愛我,
那怕是長夜沒有盡頭 祂會陪我度過.

當我完全不知所措 我還是相信 相信上帝依然愛我,
祂的愛是我堅強的理由 給我勇氣面對明天
每一步 勇敢的走 每一天 好好的過,
因為上帝愛我 祂會陪著我走.
在冰冷的夜空 還有星星告訴我,
祂就在這裡 看顧著我.

走出了憂鬱 陰暗的角落,
在祂的愛裡 我用信心等候



引用
引用第606楼细柳于02-27-2014 01:10发表的  :
亲爱的朋友们,谢谢你们!

东方,谢谢你的分享!我也知道,其实我信不信主,都一样可能得乳腺癌,只不过因为信主,所以又多了一个可以生气的理由,神啊,你为什么让我经历这个?

亲爱的朋友们,看了你们的留言真的让我感动。其实我可能是太幸运了,生活到现在为止就只有一个遗憾:没生个老二。所以一不高兴,就把这个拿出来跟上帝抱怨,因为这是到现在为止,上帝唯一没有赐给我的东西。
.......

感恩,平安,喜乐,惜福。。。
wenwendywen 离线
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612楼  发表于: 2014-02-27   
还有我低沉的时候,会看看他的故事

http://www.attitudeisaltitude.com/

Hi Friend,

My name is Nick Vujicic and I am thankful to have been born 30 years ago with no arms and no legs. I won’t pretend my life is easy, but through the love of my parents, loved ones, and faith in God, I have overcome my adversity and my life is now filled with joy and purpose. I reside now in California with my wife, Kanae, and we both love seeing people’s lives changed for the better or touched in some way. It is my hope that your life is positively impacted by my story.

I was born and raised in Melbourne, Australia, and it was a shock to my parents that I arrived without limbs. There is no medical reason for it. My parents did their very best to keep me in the mainstream school system and give me every opportunity to live to the fullest. I was blessed to have a brother and a sister as my best friends too.

We later moved to Brisbane, Australia, where I lived for 14 years before I made the move to California. At age eight, I could not see a bright future ahead and I became depressed. When I was ten years old, I decided to end my life by drowning myself in a bathtub. After a couple attempts, I realized that I did not want to leave my loved ones with the burden and guilt that would result from my suicide. I could not do that to them.

I wasn’t depressed my entire childhood, but I did have ups and downs. At age thirteen I hurt my foot, which I use for many things like typing, writing and swimming. That injury made me realize that I need to be more thankful for my abilities and less focused on my disabilities.

When I was fifteen years old, I sealed my faith in God and from there it has been an amazing journey.

A janitor at my high school inspired me to start speaking about my faith and overcoming adversity when I was seventeen. I spoke only a dozen times to very small groups over the next two years. Then I found myself in front of three hundred sophomore (grade 10) students and I was very nervous. My knees were shaking. Within the first three minutes of my talk, half the girls were crying, and most of the boys were struggling to hold their emotions together. One girl in particular was sobbing very hard. We all looked at her and she put her hand up. She said, “I am so sorry to interrupt, but can I come up and hug you?”

She came hugged me in front of everyone, and whispered in my ear, “Thank you, thank you, thank you. No one has ever told me that they loved me and that I am beautiful the way I am.”

Her gratitude inspired me to go across 44 countries and speak 2,000 times. I realized that we all need love and hope and that I was in a unique position to share that with people around the world.

While majoring in both accounting and financial planning at a university, I also worked on developing my abilities as a speaker. I worked with a speaking coach who helped to cultivate me as a presenter. He especially worked on my body language as my hands flew everywhere at first!

I spoke on motivational topics after creating the company, attitude is altitude. I also launched a non-profit ministry, life without limbs, to spread my messages of faith and hope around the world.

Whoever you are, wherever you’re from and whatever you are dealing with, I hope that you will be inspired by my story and my message. Please enjoy browsing around this website where I share with you my thoughts on faith, hope and love to encourage you and to help you overcome your own challenges.

Dream big my friend and never give up. We all make mistakes, but none of us are mistakes. Take one day at a time. Embrace the positive attitudes, perspectives, principles and truths I share, and you too will overcome.

Sincerely,
感恩,平安,喜乐,惜福。。。
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613楼  发表于: 2014-02-27   
http://www.lifewithoutlimbs.org/about-nick/bio/

BIO

Nick Vujicic

Imagine getting through your busy day without hands or feet. Picture your life without the ability to walk, care for your basic needs, or even embrace those you love. Meet Nicholas Vujicic (pronounced VOO-yee-cheech). Without any medical explanation or warning, Nick was born in 1982 in Melbourne, Australia, without arms and legs. Three sonograms failed to reveal complications. And yet, the Vujicic family was destined to cope with both the challenge and blessing of raising a son who refused to allow his physical condition to limit his lifestyle.

The early days were difficult. Throughout his childhood, Nick not only dealt with the typical challenges of school and adolescence, but he also struggled with depression and loneliness. Nick constantly wondered why he was different than all the other kids. He questioned the purpose of life, or if he even had a purpose.
According to Nick, the victory over his struggles, as well as his strength and passion for life today, can be credited to his faith in God. His family, friends and the many people he has encountered along the journey have inspired him to carry on, as well.

Since his first speaking engagement at age 19, Nick has traveled around the world, sharing his story with millions, sometimes in stadiums filled to capacity, speaking to a range of diverse groups such as students, teachers, young people, business professionals and church congregations of all sizes. Today this dynamic young evangelist has accomplished more than most people achieve in a lifetime. He’s an author, musician, actor, and his hobbies include fishing, painting and swimming. In 2007, Nick made the long journey from Australia to southern California where he is the president of the international non-profit ministry, Life Without Limbs, which was established in 2005.

Nick says, “If God can use a man without arms and legs to be His hands and feet, then He will certainly use any willing heart!” Nick’s latest foray into radio will expand his platform for inviting men and women all around the world to embrace the liberating hope and message of Jesus Christ.

感恩,平安,喜乐,惜福。。。
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614楼  发表于: 2014-02-27   
Mary,谢谢你!我因为从来不生病,所以现在觉得日子特别难熬,希望快快熬过去!

三文,谢谢你的诗歌和圣经故事,我看过Nick Vujicic的书,也听过他的演讲,他真的是很坚强乐观的一个基督徒,他也必定曾经有过很多象我现在一样难熬的日子吧。磨炼的过程是不容易的。再次谢谢你的诗歌!

谢谢江文筱!

Oqei,我要等着宝子妈给了我药名才能找。昨天兔子打电话和我聊天的时候还说,我现在的症状很象妊娠期的症状,恶心、呕吐,想吃的东西完全不着边际。我就想起你来,我想如果我象你一样中奖该多好啊,那样的话吐也吐得开心。你想多要一个孩子会影响你的很多计划,可是象我呢?我的很多计划也一样被搁置了,无论是工作,还是旅游。即使一切顺利,这次治疗也耗费了我生命中一年的时间。而且,比起拿一年的时间生养孩子,多少的困惑、悲伤和对上帝的失望。
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615楼  发表于: 2014-02-27   
我左边莫名其妙隐隐作痛但是没有肿块,医生order了下个礼拜照片子+B超。去年年检没事,希望今年再没事
随遇而安, 知足常乐。
细柳 离线
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616楼  发表于: 2014-02-28   
回 615楼(newport93) 的帖子
放心,能够疼的时候老早已经长肿块了,不长肿块的疼绝对不是。
jiangwenxiao 离线
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617楼  发表于: 2014-02-28   
每天都来看看 我现在学做面包呢,你要是有兴趣,我可以给你把我的笔记给你看。
端午去海边,开心~
oqei 离线
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618楼  发表于: 2014-02-28   
回 614楼(细柳) 的帖子
细柳,这次化疗结束没?希望你快点好起来。昨天就是准备回其他帖结果没看好妞妞,还好没事。所以对二宝我还是有很多顾忌的,虽然有公婆住在一起,也只是在一起而已,不能指望他们照顾孩子,照顾月子都很勉强,我是心有戚戚。不过我怀妞妞时连个喷嚏也没的,没有什么反应,倒是生了之后身体差一些。
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619楼  发表于: 2014-02-28   
回 606楼(细柳) 的帖子
懂事的孩子, 细柳,坚强的乐观的度过每一天。
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